Young citizens’ involvement in clinical trials.

Children and young people have the right to participate in science and health research. They have the right to freely express their views as per art. 12 of the Convention of the Rights of the Child, and the right to the highest attainable standard of health, and to facilities for the treatment of illness and rehabilitation of health.

YEAH (Youngsters EngAgement in Health) is a capacity building programme granted by EiTHealth and designed following a sustainable and ethical approach to facilitate the involvement of young people in health science thus enabling patient-centric initiatives.  

Four educational modules have been designed to train children and young people to be actively involved in the drug development process:

1. Designing research projects with children and young people
2. Co-creating health research with young people
3. Quality of Life and Patient Reported Outcome Measures (PROMs)
4. Research information for young people

The training is addressed to:

• Children and young people who are YPAG (Young Persons Advisory Groups) members,
• Young advocates of patient organisations, and
• Senior school students interested in health science.

Each module offers:

• A lesson plan for facilitators of YPAGs or of patients’ organisations, and/or for secondary school teachers
• Toolkit with activities and prompts based on real case studies
• Complementary resources to provide young people with a deeper understanding

To access YEAH’s capacity building programme, please contact Begonya Nafria, project coordinator, at bnafria@sjdhospitalbarcelona.org

The consortium of the YEAH project is formed by: 

• Sant Joan de Déu Barcelona Children’s Hospital (Coordinator)
• The University of Liverpool
• Universitat de Barcelona
• Institut de Formació Continuada (IL3-UB)
• Bayer AG
• Sanofi

You can find more information about the project here.